Multi-national and multi-disciplinary student groups discuss cutting edge global issues – genetics, AI, and justice

Authors: Anna Kniazeva, Stephen Aremu Published date: 26-01-2020 Status: Published

SUMMARY. Leading academics, who spoke at the Conference “Justice in the genomic and digital era”, an International Conference hosted by The Accessible Genetics Consortium (TAGC), have explained that there are gaps in the existing laws that guard the protection of information extracted from sequenced genetic data. These gaps are observed cross-continentally. For example, in the US, specific laws such as GINA 2008 and the Canadian Genetic Non-discrimination Act 2017 provide very little protection to individuals. In the EU, even the most relevant legislation to date, the GDPR, provides insufficient protection - for example, one provision provides protection and another, counter-protection. The reasons for this include the high economic value and interests accorded to big data, such as that generated from sequenced genetic data; and the fact that this genetic data are needed for different research purposes in the field of medicine, science and other areas.

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